My mother was once a beautiful, vital, vivacious, smart, intellectually engaged, and generous woman. She was strong-willed, independent, high-powered, and passionate. Her family meant everything to her and she had many devoted friends.
Today, at 96 she is nearly blind, nearly deaf, and has dementia. She can no longer read, hear music, listen to books on tape/CD, or watch television. She falls frequently and has many aches and pains. Most of her friends have died and all her nine brothers and sisters are gone.
Two years ago it was clear to my brother, me and everyone who knew her that she needed to move from part-time to full-time care, but she could not afford to have someone live in her home 24-7. We decided to move her from independent to assisted living, but she resisted mightily. At last we refused to take “no” for an answer.
Over these two years her situation has worsened. At times my mother knows who I am, but she forgets seconds later and wonders what strange man is sitting with her, and why. I remind her that I am her son, but she is now more often than not bewildered, frustrated and angry because she is aware enough to know how much mental capacity she has lost and of the dramatically shrunken world in which she exists.
Only two things sustain her these days. She has some of her long-term memory remaining, and so she recalls vividly her parents and siblings thus bringing them alive; and her knowledge that my brother and I we are well and happy offers her a measure of comfort.
I share my mother’s situation with you because I know that my brother and I are not alone. Many others also experience the disabilities that afflict their parents, grandparents and loved ones as they reach extreme old age.
In a lucid moment yesterday, my mother asked me, “What could I have possibly done that God hates me so much to make me so miserable!”
I took her hand and said, “Mom – How could God possibly hate you? You have always been loving and generous. You were always the first to respond to those in trouble and who needed help – to family, friends and strangers. You contributed to every good cause. You served the Jewish community devotedly. I cannot believe that God is angry at you. Rather, I am sure that God loves you. I love you. Michael [my brother] loves you. You are just very very old, and this is what happens when people get old like you!”
She listened but didn’t respond. I don’t know if she understood me.
What else could I say? She is miserable, and for good reason.
She spoke about another woman, Anna, who is a resident on her floor and a devout Catholic, and said that Anna has more reason than most to end her life because she is “even more miserable than me!” She added, “There are ways to end your life, you know. But she won’t do it, because she’s religious.”
“What about you, Mom? Do you ever want to end your life?”
“Yes, I want to die,” she said, “but I would never take my life for the same reason that she doesn’t take hers!”
I marveled at how strong, still, is my mother’s faith. From the time she was a child in Winnipeg, Manitoba she was a deeply spiritual and religiously inclined person. On Friday nights she secretly went to synagogue alone without her parents and siblings knowing because they thought religion was nonsense. She told them she was attending school events.
Every Shabbat for months I have been offering a mi shebeirach healing blessing for my mother over an open Torah; but of late, I have begun to wonder whether I should stop based on a famous story from the Talmud.
When the great Rabbi Judah HaNasi was near death his disciples came to pray on his behalf in the courtyard below his window. His maidservant, hearing the desires of those “above” for Rabbi Judah’s soul and the desires of the students “below” decided to drop an earthen vessel to the courtyard stones hoping that the crash would at least momentarily distract Rabbi Judah’s students from their prayers. The noise indeed diverted their attention and they stopped praying. It was then that Rabbi Judah gave up his breath to God. (Talmud Bavli, Ketubot 104a). Rabbi Judah’s maidservant is regarded positively and with respect by tradition.
The Biblical Kohelet wrote that there is
“A season set for everything, / A time for every experience under heaven; / A time for being born and a time for dying…” (3:1-2)
When is my mother’s time for dying? Are my prayers on her behalf in any way sustaining her when she so deeply wishes and is ready to pass on?
Excruciating questions, and I have no answers.
This is a very powerful story. Thanks for sharing this. Bill
My heart goes out to both you and Michael. I went through a similar ordeal with my mother who was in a vegetative state for over 8 years but I knew that she did not want her life to end. I think this may be true for your mom because in her moments of clarity she still maintains a certain passion for life- there are no simple answers. Maybe the best we can do is make our wishes known to our children. Much love, Harriett
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Thank you for an important and timely piece; you would not have known how timely, but you guessed correctly. I echo Bill and Harriet’s comments and add our thanks.
Thank you John. I’m sitting here crying reading your piece, because I have watched your mom decline, because I have been living with my own parents as they disintegrate, because I see my own body and mind aging and want to look into a different future. Yes, I too, wonder, when do we stop praying. Much love, Davia
John, Your words were open, honest and very real. So much of life is a mystery – aging no more so than than birth and maturation. Yet the struggle of aging has no redeeming value, other than the ultimate end of that struggle. Not God’s will, not our will, but just one of the possible ways that our years are brought to an end. Your love, your presence, your caring are the greatest gift a loving child can bestow. Thank you, my teacher. Stan
I would like to believe that our prayers of healing are to offer up and ask for what is best for the person, whether it be a restoration of health or their time to pass. The praying is up to us, but the result, perhaps not.
A quite beautiful and sensitive and painful piece John, and a moving tribute to you and to your mother. What a blessing–to have had one another all these years. And how sad, what she must endure when she moved from older to old.
With much affection,
Leonard
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John,
I just returned from AZ where I attended a memorial for a friend of mine of over 30 years and our age, so I am “emotionally sensitive”.
My thought and prayers are with you and your mom. I was there several years ago. My mom many times ask for a shot 18 months before she passed and was very serious about it. Had there been a way, I would have done it. Over the last few years I have realized that I am not afraid of death, but I am afraid of dying.
I would suggest that you use your oratory capabilities and you pulpit to again remind us that one of the greatest gifts we can give our survivors is to have an Advanced Directive, a Will/Trust, and most importantly, sit down with them and make our wishes very very clear.
I have instructed my family that if they have to error in their decision, error on the side of putting me out.
Again, my thoughts are with you, your mom, and your family.
Joel